First, I stopped at the medical assistant area for her to download all the readings from my glucose meter, pump, and CGMS. There were apparently some issues with my CGMS printouts (perhaps because I let the battery die recently and didn’t make sure the date was correct when I revived the battery). She also gave me a printout of my recent lab results, all of which looked good except the liver tests. Huh.
She also asked me about any changes in what I was taking (B12, D, and multi-vitamin), so I told her about the iodine and co-factors. She was not too happy to hear about that, and told me that diabetics who take that need to be really careful because it affects the thyroid. I didn’t say that I WANT it to affect my thyroid. I just told her I was doing it under close supervision, which she said was good.
Once the doctor arrived, he asked if I had had any changes recently. I asked him how much he wanted to know. He said, “Whatever you need to tell me.” I said that I don’t need to tell him anything! Hehe.
But then I proceeded to tell him about getting my iodine tested, finding out I have a deficiency, and starting on iodine supplementation. I also told him about my two-week cold that had affected blood sugars, and how my blood sugars have been a little strange since starting the iodine, but that my basal insulin needs are a little lower than last time he saw me.
Of course, when I mentioned the iodine, I knew I was asking for it. :)
So then he launched into his diatribe on taking iodine and how people with diabetes are prone to autoimmune diseases, one of which is Hashimoto’s Thyroiditis, and how he only foresaw problems from taking iodine. So he looked at my thyroid tests (which had been normal last time and were again normal this time) and said that it didn’t appear to be messing with my thyroid so far, so at least that was good.
Then we discussed the other lab tests. The A1c was again lower than he wanted (higher than I wanted), at 5.9%. He said that was at least higher than last time, which he liked. I told him it wasn’t from running my blood sugars higher; it was from getting more high blood sugars during my two-week cold, and from unpredictable blood sugars during the iodine supplementation process.
That also was why the glycomark was again too low, which he noted, but said it was to be expected with all the carbs I eat.
He wanted to take a closer look at my CGMS readings, but due to the mess-up, only had good readouts from the last four days and said everything looks really good, in range, and that though there are highs and lows, somehow I make it work. (The medical assistant had also said it looked really good.)
He then went into his usual commentary on my extreme high-carb diet, and how of any of his patients, I am the one he worries most is going to be the one who has a low blood sugar that makes me drive off the road into a tree. He said that I am getting it to work time after time, but it only takes one time to die from a low blood sugar. I again thanked him for caring.
He asked why I wanted to just be so extreme. He talked about how patients with type 1 diabetes, 50 years ago, would have been in a really bad shape if they ate the way I do. I said, “I would have been dead.” He agreed with me. (I remember reading about the aunt with type 1 diabetes in Corrie Ten Boom’s The Hiding Place, which occurred during the Holocaust.)
He said that before we had insulin for diabetics, they didn’t live past their teens, and the only way they survived was by avoiding any kind of carbohydrates. He said he "gets" type 1s wanting to live a normal life and being able to eat carbohydrates like everyone else, but that I take it to the extreme and eat three times as many carbs as everyone else. Why do I feel the need to go against what is supposed to happen?
I told him that I saw his point, but that I am not doing it out of rebellion. That, in fact, if you think about what is supposed to happen, are we humans designed with teeth to bite into the flesh of animals? No. We are designed with bodies that work to digest fruit. I am trying to do what is normal for the human body, and do what works best for health.
He said, well, how is this helping your health? Looking at your lab tests, you’ve got something strange going on with your liver! So I didn’t go into how the fruit-based diet had helped my health (didn’t feel the need to go through that whole conversation again, as it apparently had not made an ounce of difference the last time we had the conversation). We switched to the topic of the liver lab tests.
He asked if I had had any recent colds, and I told him I had. (I actually had just thought I was getting a new one on the day before the lab test, which was one reason I wanted to cancel the appointment, but it feels like my body has fought it off or something, because I didn’t seem to get the cold my hubby did this time.) I asked if a cold could cause a bad liver test result like that and he said yes.
(*I forgot, but was just reminded upon discussing this with Don Bennett...my endo did say that those tests reflect inflammation in the liver. Don thinks it could very well be due to bromine detox. I will be checking with Doc Flechas in my upcoming consult.*)
He also asked if I had had any contact with anyone with hepatitis. I told him I didn’t think so. (I did just kayaking with a bunch of people with disabilities, and helped people in and out of kayaks, and I touched a lot of disgusting folding chairs to set up and tear down the event, one of which apparently had dried puke on it…so who knows? I shake hands with people at church all the time, too. But I am not aware of having had blood or fecal contact with anyone with hepatitis.)
He said those readings could be a fluke. He couldn’t think of any other reason why I might have them. I told him about bromine detox that happens with iodine supplementation and wondered if the increase in detox of halogens might contribute to high readings on liver function tests. He said he really didn’t know; that’s all alternative medicine stuff. He asked about the detox—mainly wanted to know if they were giving me any “crazy hocus pocus” stuff. I told him it’s just iodine and co-factors.
He asked why I was supplementing with iodine and who told me I needed it. I told him I got tested for it and had a deficiency. He asked why I got tested for it. I told him that I know he didn't want me to do it, but that even though my thyroid levels were normal, they can commonly be normal even with deficiency, and raw vegans are commonly deficient in iodine (but other people are starting to get more deficient too, because it isn't in our soil).
Then he started talking about the hocus-pocus-ness of this stuff and how there are no iodine deficiencies in the United States, and how all the improvements are placebo effects the first month and nobody follows people for longer than a year.
I told him it actually takes like a year to normalize iodine levels, and you actually feel worse for a long time due to bromine detox. I also told him about Doctor Flechas, and how he has studies online. I couldn’t believe it, but he actually wrote down his name, and then looked him up while I was sitting there. He found him, and was like, “…but this guy is in North Carolina…” and I told him, yep, that’s him. We talk on the phone or via email.
So he said he is actually going to read about him a little. He said doctors like this aren’t really doing “studies”…it’s more just “this happened with this patient” and so on. I said, “Oh, yeah, then you probably won’t like the stuff he has out. He probably doesn’t write what you are looking for.” I told him that there are other doctors too…Guy Abraham…I think he wrote that down…Hakala Labs….I didn’t remember David Brownstein until I was in the car. Well, we’ll see what he looks up and finds. I hope he doesn’t find my blog! Hehehe
So he wants me to re-check the liver tests very soon. I asked if I can wait ‘til after I talk with Dr. Flechas, and he said, okay, as long as it isn’t two months from now.
He also did the physical exam, which was all good, even felt my thyroid (which was fine) and palpated my liver (which was fine) and asked if I had any pain, and I told him I did not. So he was a bit baffled about the liver readings.
I also remembered then to tell him about the fibrocystic changes in my breast. I failed to mention how that is related to iodine deficiency. Maybe I will in a future visit.
Overall, it was pretty much like every other visit….to be repeated in four months. I am quite curious about the fact that he is actually going to read about these guys, though. I wonder what his response will be. He told me today that it is good for me to hear from "the other side", not just all the hocus-pocus alternative medicine folks. I told him, "Well, it sure is entertaining to hear from you about them!" :) hehe.
As frustrating as it can be for both of us to work together, I really think he is a good doctor, really just trying to do the best for his patients. I would love to see what happens years down the road and hope I will still be working with him as things improve in my body, which I hope, pray, and somehow trust they will. :)