Probiotics: I have rotated through several brands of probiotics, a couple with extended release. I am currently hearing good things (for "moldies", "lymies", and those with gut issues) about VSL-3 (very strong probiotic), Primal Defense (soil-based organisms), and Hyperbiotics (Pro-15). I have Primal Defense to try now, and will probably try the others as well, one at a time.
Digestive Enzymes: I have tried a few different brands, and find I really like how I feel with TwinLabs Super Enzymes. This brand has a small amount of HCl, pancreatin, bromelain (from pineapple), and papain (from papaya). I am currently taking 4x/day, to help digest supplements and get the most out of my meals. When I was eating higher protein/fat meals, this enzyme blend helped me avoid pain (when I took enough).
Stomach Pain Helpers: I am currently living on juicy fruit (watermelon, papaya, mango, honeydew, lychee, etc) and green juices (tender leafy greens, cucumbers, celery, carrots, dandelion, cilantro). On this diet, I do not get stomach pain, so I no longer use Apple Cider Vinegar.
Whatever the explanation, I now choose to use other options for "binding"/chelating toxins. I am feeling better since removing the Chelex, but I believe it was contributing to my digestion problems.
I am not currently using chlorella, but may add it in again at some point. My current "binders" are the fresh cilantro and dandelion that I add to my green juices. I also have some activated charcoal that I may try as a binder at some point. I have heard good things about it from other "moldies" and "lymies".
Aloe vera helpful medicinally for many things, including essential amino acids.
Hemp seed for essential amino acids and essential fatty acids.
Hemp protein powder for more essential amino acids without more fat.
(Aloe, approx. 1 cup twice a week. Hemp seed, 1 tbsp per day, in the evening. Hemp protein powder, 1-2 scoops--3 tbsp each--per day, as tolerated)
Currently for essential amino acids I am getting in as much green juice as possible every day. I generally do 5-8, 8 oz. glasses of green juice, sipped slowly and spaced an hour apart. To my juices, I add juiced barley grass powder, 6 tablespoons per day, and 1 tsp. moringa powder (whole plant food, currently from Organic India).
Though I find it difficult to track protein intake this way, I am avoiding the trembling and weakness from amino acid deficiency by using the green juice routine described above. Daily, I aim for 3 of my green juice glasses to come from romaine leaves, which are a good source of amino acids.
I chose to drop the copper, like many other "moldies" had done, and continue with just zinc. I recently have ordered zinc orotate because it apparently reaches the brain better than the other forms. I will try it, and may continue, or may return to zinc gluconate.
I have chosen to continue with the B vitamin complex from Xymogen that my holistic doc recommended, which includes (methylcobalamin) B12, 5-MTHF, and other B vitamins. I also like that it contains biotin, because I keep hearing that biotin would help me with my hair loss issues. :)
So they both got dropped, and since it is summer in Florida, and I spend most days outside, I am getting plenty of D from the sun.
Juiced Barley Grass Powder for various vitamins and minerals. (If I'm craving salty or greens, I know I'm low in minerals!) Vanadium, chromium, sodium, etc. (1-3 scoops--3 tbsp each--per day, spread throughout the day. Currently taking a scoop in a glass of coconut water, but better with food like bananas if the body can tolerate it.)
This is my first time with a UTI, so I asked for what had helped others get rid of UTI (other than antibiotics) and just tried a variety of things:
Vitamin C: Doc recommended 3000mg, 4 times/day.
D- Mannose: Doc recommended 3 capsules, 3 times/day.
UTI Clear by Native Remedies came highly recommended, but I haven't tried that yet.
Various herbs + cranberry, recommended by some, but others say cranberry makes it worse. Stopped taking this one.
Coconut oil, used 1 tbsp daily at first, but have since stopped using it. Still use coconut water, which is also supposed to be helpful.
Himalayan Sea Salt, used by some to kill infection, also rich in minerals, although in inorganic form, which is not as helpful as the minerals in juiced barley grass powder. But also used to help with detox for some and for electrolytes for others, so shake it on salads a few times a week.
I am not using the above items except for Ester C. I have read that it is extremely helpful for healing, including Lyme and mold, so I have continued with it. I am currently taking 10,000mg/day but will probably return to 12,000 (3000mg, 4x/day).
Candicidal is for GI balance, killing off the "bad bugs" (like mold) in the gut, and supporting the "good bugs".
S-Acetyl Glutathione helps with detox. Glutathione is the master detoxer. Some people use coffee enemas, along with L-glutamine, to boost the body's natural production of glutathione. S-Acetyle Glutathione is supposed to be able to be used by the body; most forms get destroyed during digestion before the body can use it. Whether this holds true or not, I don't know, but for now I'll keep taking it.
I think this is a horrendous amount of pills and supplements! I cannot stand taking so much stuff! It is also extremely expensive! This is why we opt for some of the less-expensive options above, and will continue to look for supplements that both work for us AND are as affordable as possible.
Sure hope this works and that we can get off all this stuff...sooner rather than later! Grateful to hear confirmation from multiple individuals who have dealt with mold-induced health problems, that these options were indeed helpful to them.
I've learned that it is good to rotate through different probiotics, to get multiple "good bacteria" strains, so we will plan to get a new brand each time one bottle empties.
Here are the new things I am taking/substituting:
My enzymes + probiotics ran out, so I ordered new enzymes but haven't needed to try them yet. I may, at some point, try alternating them with HCl to see what happens.
Meanwhile, I've been using 2 capsules HCl with meals to raise the acidity level in my stomach, thereby helping with digestion. It seems to be working well to avoid digestive pain. My fallback is still Apple Cider Vinegar, which brings relief if I do happen to experience pain.
Lastly, I've begun eating approx. 1/4 cup raw sauerkraut before solid meals, to increase probiotic population and help stimulate stomach acid production.
It feels really good to do so.
Sauerkraut is high in histamines, so I stopped for a month or two to see if it made an improvement in symptoms. I did not notice any improvement by removing it. I have since added back in a few forkfuls per day, that I eat with my Udo's omega oil (and TwinLabs enzymes) to help with digestion.
I also think the sauerkraut may be helpful for fighting mold in the gut because of the salt and garlic, along with the probiotic qualities. As an added bonus, I think the garlic has been helping me be less attractive to mosquitoes when I sit outside. Big bonus! :)
Gut healing: probiotics (rotating), enzymes (TwinLabs), Xymogen S-Acetyl Glutathione
Detox: Xymogen Liver Protect, Xymogen B-Activ, fresh cilantro, dandelion
Anti-Mold: Xymogen Candicidal, diluted hydrogen peroxide nasal spray, Ester C
Nutrition, Deficiency Support: green juices, juiced barley grass powder, moringa, sunshine, iodine & co-factors, zinc orotate (or gluconate), Udo's omega oil